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Frequently Asked Questions

  • The exact cause of lipoedema is not fully understood. However, it is believed to involve hormonal factors and genetics. Lipoedema often becomes noticeable during puberty or other hormonal changes and can run in families. Although the precise triggers for lipoedema development are still being studied, hormones and hereditary factors are thought to play a significant role.

  • While traditionally lipoedema was thought to be found in the thighs, buttocks and lower legs, and sometimes in the arms, Dr. Karen Herbst and her colleagues reported in 2015 that lipoedema fat can be found anywhere on the body, from the top of the head to the underside of the foot. However, most women find lipoedema in their legs, buttocks, and arms.

  • Areas of the body affected by lipoedema are often sensitive to the touch or painful, bruise easily, and have a textured appearance of the skin, often described as "cottage cheese" or "mattress-like." Individuals may also experience a heavy or achy sensation in their affected areas, especially after long periods of standing or certain physical activity.

  • Lipoedema is typically diagnosed through a combination of physical examination, medical history review, and evaluation of characteristic symptoms. Healthcare professionals, such as vascular specialists, physiotherapists and surgeons, may assess the distribution of fat, tenderness, and other signs during a clinical examination. In some cases, imaging tests like ultrasound or MRI may be used to support the diagnosis and rule out other conditions.

  • Yes, lipoedema is often mistaken for obesity due to the distribution of fat in the lower body, and other areas. However, unlike obesity, lipoedema fat is not typically responsive to traditional weight loss methods such as diet and exercise. Understanding the characteristic symptoms of lipoedema, including pain, fatigue, and sensitivity to touch, along with consulting your healthcare professional can help differentiate between lipoedema and obesity.

  • While lipoedema does not have a known cure, there are various treatment options available to conservatively manage your symptoms. Treatments may include wearing well-fitted compression garments, receiving specialised manual lymphatic drainage massage, engaging in low-impact exercises - particularly water exercises, and adopting a low-inflammatory diet. In certain situations, surgery may be considered to reduce excess tissue, including liposuction and skin excision. It is important to consult with a healthcare professional to determine the most suitable treatment approach based on your individual circumstances.

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