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Tell Your Story

Why is Your Story Important?

So many of us find out about lipoedema, and get our own diagnosis through word of mouth - hearing stories of others, and finding something that resonates with our own experiences.

Everybody has a different story to tell - while there may be similarities in the path we have walked, we are all unique in our lipoedema story, and should be viewed as such. Part of what captures the attention of the non-lipoedema world is our individual stories - the human side of lipoedema, and what it means to have a delayed diagnosis due to lack of understanding of our condition. From health professionals, the wider community, government and regulatory bodies, the more stories we share, the louder our voice.

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What do we Need From You?

If you’d like to share your story on the Lipoedema Australia website and social media pages, please send through your responses to the following questions, along with some photos of yourself suitable for publication to info@lipoedema.org.au

  1. Tell us a bit about yourself. Whatever you feel is important that isn’t covered in other questions.

  2. When did you first notice your lipoedema symptoms?

  3. What was your experience of receiving a diagnosis?

  4. How did you first find out about Lipoedema Australia and our Facebook Support Group?

  5. How has Lipoedema Australia and our Facebook Support Group helped you in terms of knowledge and support?

  6. Aside from Lipoedema Australia and our Facebook Support Group, where else do you find information and resources about lipoedema?

  7. How do you manage your lipoedema?

  8. Have you faced any obstacles in receiving treatment/support in relation to lipoedema?

  9. What advice do you have for people who have just found out they have lipoedema, or suspect they have lipoedema?

  10. What are your hopes for the future in relation to lipoedema care, recognition and/or treatment?

Please note that submitting your story does not guarantee its publication.

All responses will be reviewed by the Lipoedema Australia board and may be edited for consistency/brevity

Find Out More

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Connect to Support

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Treatment

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Resources

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Conference

Fundraise

Your Support is Needed!

Your contribution assists Lipoedema Australia in continuing our work in raising awareness, promoting acceptance and providing advocacy for people with lipoedema. We are proudly supporting research at St Vincent’s Institute, led by Dr. Tara Karzenis and Assoc. Prof. Ramin Shayan, as well as other innovative research projects.
Donations of $2 and over may be fully tax deductible in Australia

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