1940s: Drs. Allen and Hines are the first to identify and describe lipoedema as a symmetrical enlargement of the lower limbs in women.

1960s-1990s: Lipoedema remains relatively unknown and often misdiagnosed or overlooked, with limited research and understanding of the condition.

2002: Dr. Karen Herbst, an endocrinologist, publishes a comprehensive review on lipoedema, contributing to increased awareness and recognition of the condition.

2008: The British Lymphology Society includes lipoedema as a separate entity in their guidelines, highlighting the need for early recognition and appropriate management.

2011: The Fat Disorders Research Society (FDRS) is established in the United States, focusing on promoting research, education, and support for individuals with lipoedema and other fat disorders.

2014: The Lipedema Project is launched, dedicated to raising awareness, promoting research, and providing resources for lipoedema.

2016: The International Lipoedema Society (ILS) is formed, aiming to support and empower those affected by lipoedema through education, advocacy, and community-building.

2018: The Lipedema Foundation is established, with a focus on advancing scientific research and finding effective treatments for lipoedema.

2020: The British Journal of Dermatology publishes updated international consensus guidelines for the diagnosis and management of lipoedema, providing standardized criteria and recommendations.

2021: The Lymphatic Education & Research Network (LE&RN) includes lipoedema in their mission and advocacy efforts, emphasizing the need for recognition and support for individuals with lipoedema.

2022: St Vincent’s Institute researchers in Melbourne, Australia identify an abnormal stem cell involved in lipoedema, as well as a gene (Bub1) that causes its sufferer’s fat cells to multiply in a similar way to cancer cells.